The little things in life...

We expected to go and see the paediatric surgeon and for her to say we won't be doing anything with Daisy and pass us on to the West Midlands rehabilitation centre. Who basically will support us in Daisy's development in the way of any adaptations she may need, for example grips on a bike etc. This is the impression she gave us on her last visit. 

It went pretty much how we expected except we will still be under her care for  at least another year, because she would like to see Daisy again and see how she is developing. She mentioned surgery but in the respect that there isn't anything she can do at this time, thank goodness! To be honest if she had offered us that option I am 99% sure we would have declined. For now we really don't want to upset the development she has made and how happy she is, why would you want to put your baby through that? What if it did more harm than good? All theoretical questions obviously! 

If you have seen any of my YouTube videos or follow this blog then you'll know there is nothing Daisy hasn't been able to do yet, she is doing beautifully. She crawls without any issues, picks things up, feeds herself, holds her own bottle, gives the best cuddles ever, has a good right hook and is generally showing us no concern at all with her physical development. She is so strong and seems to do new things every single day!

She absolutely loves swimming and climbing and generally being a menace, it certainly will not hold her back!


Just thought I would give a little update as I do get asked every so often :)


If you are new to our blog then please feel free to catch up with our little story here.

Lots of love,

Hayley & Daisy xxx

So I haven't really talked about Daisy's hand since this post here. The post where I talked openly about how Daisy was born with what the professionals call a transverse limb, to some and to us it's her little hand. I thought I'd write a little update on it, because I know people are genuinely interested, because I am proud of her development already and the more I talk about it the more accepting it feels and also importantly for awareness. 

Daisy is at a point in her development now where coordination comes into play, grabbing at things, playing, wanting to hold her bottle herself (when she isn't refusing it!!!), pushing herself up at tummy time etc. And I'm happy to say nothing is of concern at the moment. She is able to use both hands to hold her toys, she gives little cuddles with both, she has a good right hook and is able to push off it when on her tummy no problem so I honestly can't see crawling for example being a problem. 

Also the bigger she gets the more movement you notice she has in it too, she's able to freely move it like a wrist and so I'm hoping she will be able to use it more and more as she gets bigger. 

I am always ensuring I try to stimulate her to use both when playing and interacting, which I think can only help. She obviously has no clue that she has any kind of disability at this age and so shows no frustration or anything. 

I don't really notice it much anymore as I guess it's just her to us, we've accepted it. As hard as it is at times, it is what it is and we have to for her sake, but that doesn't mean I don't stop and think on the odd occasion. Times like this usually come after someone has asked about her, more often than not it's just children asking little questions. 

But at least children ask! Adults don't seem to ask. It's our culture I think, we don't like to talk about difficult things, we don't like conflict and we just don't face things head on. People aren't rude they just don't know what to say, over polite perhaps, I'm not sure!! Of course I could read Into things far too much because I'm over sensitive and protective. I always expect people to ask or to mention her when we are out for example at rhythm time or baby massage but nope this week we've had no one. 

I've read several blogs lately, including Born just right (find it here- www.bornjustright.com) which is a real eye opener to the little world of limb deficiencies and the way it affects peoples lives but also how it doesn't affect them as severely as you may think. We have to remember though there are different disabilities, circumstances and situations leading to them though so no two are the same. But it does help reading others experiences. Well it helps me anyway.

Lots of love,

Hayley xxx